Sorry we are not keeping up with this blog as often as we want. I just got some new pictures so I will put some of them up soon. Our days seem to fly by between time at the hospital, keeping up with home, and catching up on all the things we have let slide for the last 11 weeks.
Just as a quick update Laney is doing great. It has been a tough week. The first 2 weeks she seemed to be flying along going from ventillator to ventillator making leaps of progress. She was advancing feeds and her lungs were making consistant improvement. It felt like Kevin and I were grabbing her coattails and just getting pulled along for the ride. Well over the last week we hit a plateau. She was still doing well but she is on maximum feeds and her lungs are great they just need to get stronger in order for her to get off the C-pap. Well, the problem is that she hates the C-pap and was spending all her energy fighting it. So we were in a spiral and kind of a standstill. It has been a little discouraging for us to watch. When you couple all that with a lack of sleep I have to say I have done my share of crying this week.
On a brighter note! We seem to have possibly turned a corner. Laney received a blood transfusion yesterday and it seems to be the little push she needed to gain some ground. She is almost back to her birth weight and the episodes of her slowing or suspending her breathing have greatly declined. This is drastically improving her parents stress level. She is still on the C-pap but the doctors are convinced she is on the verge of not needing it anymore. They were no longer letting us hold her while not on the C-pap. It just seemed to wipe her out and set her back. Medically she looks like she should be able to get off the C-pap she just needs the stamina to be able to do it. The doctor today told us to start holding her off the C-pap and only on a nasal canula in order to start testing her and help her build up her muscles so eventually we can get rid of the C-pap altogether. So that is our plan for now. It is great to be able to hold her and see her face all at the same time.
That is it for now. I will get some pictures together and post again soon. Thank you all so much for following along. We are so excited that things are going so well. Thanks for your support!!
The Meyer's
Monday, March 16, 2009
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